I went three years thinking I was the only person who counted ceiling tiles after a seizure. Then I walked into this room.
Marcus
Member since 2021
Weekly circles where people who seize — and the people who love them — don't have to explain themselves.
The numbers that brought us together
Community isn't optional.
It's medical infrastructure.
Americans will develop epilepsy
3.4 million people in the U.S. live with epilepsy right now. 200,000 new diagnoses every year.
"The neurologist gave me a pill. Spark gave me a map."
— Priya, member since 2022
You are not a rare case. You are a community.
When the neurologist says "epilepsy," the room goes quiet. Most people leave that office alone, with a prescription and a printout. What they don't get is the number: one in twenty-six. That's a packed stadium. That's your coworker, your neighbor, someone in every family photo.Spark exists because isolation is its own kind of seizure — one that medicine can't touch. Our circles meet every week in church basements and hospital conference rooms because showing up in person changes something that no pamphlet can.
of patients never reach seizure freedom
Drug-resistant epilepsy affects nearly 1 in 3 people diagnosed — yet most support systems are built for the other two.
"I didn't know I could ask for a medication switch. I thought I had to just endure it."
— Devon, member since 2023
Living between medications is a full-time job.
Titration fog. The weeks when a new drug makes you feel like you're thinking through wet cotton. The fourth medication cocktail that's supposed to be "the one." Long-timers in our group have been there — and they stay specifically to mentor newcomers through it.
They know which side effects fade by week three. They know when to call the neurologist versus when to wait. They know the difference between a bad day and a bad drug. That knowledge doesn't live in any package insert.
report not being hired due to epilepsy
32% have been dismissed from work. Yet epilepsy is a protected disability under the ADA — a fact most employers and many employees don't know.
"Someone in my group had already fought the same HR battle. She saved me months of anxiety."
— James, member since 2021
Your diagnosis doesn't disqualify you. The law says so.
Driving restrictions. The conversation you're dreading with your manager. The interview where you wonder whether to disclose. These aren't hypothetical fears — they're Tuesday.Our "What To Tell Your Employer" guide was written by members who've had those conversations, lost those jobs, and won those appeals. We also keep a running thread on state-by-state driving laws, because the difference between a 3-month and 12-month seizure-free requirement can mean everything for independence.
of bystanders know what to do during a seizure
Only 1 in 4 adults knows correct seizure first aid. Less than 15% can identify a focal seizure — the most common type.
"I gave my son's teacher the action plan from Spark. She cried. She said she'd been scared for two years."
— Anita, member since 2023
The people around you need this as much as you do.
Most seizure first aid shown on television is wrong. Restraining someone. Putting objects in their mouth. These depictions cause real harm — because bystanders learn from what they see.
We run a free first-aid session at every new member orientation. We share downloadable seizure action plans you can give to coworkers, teachers, and coaches. Because knowing what to do in those two minutes isn't just safety — it's the difference between a seizure and a medical emergency.
Free Resource Library
Everything your neurologist
didn't have time to explain.
Enter your email to download any guide. One field. No newsletter unless you want one.
Seizure Action Plan
PDF · 2 pages
A one-page fillable form to share with employers, coaches, teachers, and first responders. Covers rescue meds, triggers, and post-seizure needs.
Medication Tracking Template
PDF + Spreadsheet
Log daily doses, side effects, seizure frequency, and sleep across titration periods. Designed for neurologist appointments.
What To Tell Your Employer
PDF · 4 pages
A plain-language guide to ADA accommodations, disclosure decisions, and how to request schedule flexibility for medical appointments.
Driving Laws by State
PDF · Reference guide
Seizure-free period requirements for all 50 states, updated February 2026. Includes reporting requirements and reinstatement steps.
EEG Report Decoder
PDF · 6 pages
Plain-English explanations of common EEG terms: spike-wave, focal, generalized, ictal, interictal. Bring questions, not confusion.
Seizure First Aid Card
PDF · Print-ready
Wallet-sized quick reference for bystanders. Print and share. Based on CDC guidelines — no restraining, no mouth objects, time the seizure.
Talk to a Group Leader
Not sure if this is for you?
That's exactly who this is for.
Every person who walks into a Spark circle for the first time was unsure. Our group leaders are members first — not clinicians, not counselors. Just people who've been in that postictal haze and found their footing.
Send a note. We'll match you with a leader who shares your situation — newly diagnosed, caregiver, medication-resistant, whatever fits. No intake forms. No referrals required.